Chronic Disease Archives - Healthentia https://healthentia.com/tag/chronic-disease/ Thu, 30 May 2024 11:21:16 +0000 en-US hourly 1 https://healthentia.com/wp-content/uploads/2020/04/cropped-favicon_512-32x32.png Chronic Disease Archives - Healthentia https://healthentia.com/tag/chronic-disease/ 32 32 193384636 INTERFACE https://healthentia.com/interface-study/ Thu, 09 Dec 2021 13:46:16 +0000 https://healthentia.com/?p=18919 Study Details Type: Interventional Disease: HIV/AIDS (PLWHA) Primary Site: Fondazione Policlinico Gemelli Start: 10th January 2021 Population: 1500 patients Duration: 24 months Study Description Interface is a pilot study for People living with HIV/AIDS (PLWHA) with stable chronic disease, designed by the Department of Infectious Diseases at the Fondazione Policlinico Gemelli. Gemelli has partnered with...

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INTERFACE Study..

Study Details

  • Type: Interventional
  • Disease: HIV/AIDS (PLWHA)
  • Primary Site: Fondazione Policlinico Gemelli
  • Start: 10th January 2021
  • Population: 1500 patients
  • Duration: 24 months

Study Description

Interface is a pilot study for People living with HIV/AIDS (PLWHA) with stable chronic disease, designed by the Department of Infectious Diseases at the Fondazione Policlinico Gemelli. Gemelli has partnered with Innovation Sprint to use Healthentia as the Clinical platform to offer clinical assistance through an efficient operating model to “follow” the patient, capture the evolution of his/her disease, provide assistance and care, interact also to establish proximity and relief through a remote collaborative model.

At the same time, a standardized approach to translate the huge amount of data collected on the day-to-day experience, integrated with historical health data, into useful insight and medical practices based on experience and lessons learned has been built up. People living with HIV/AIDS (PLWHA) represent a typology of patients for whom telemedicine could, particularly in pandemic times, represent an extremely useful tool of support and clinical management, quickly identifying potential sources for spreading of SarS-CoV2 diffusion and transmission among potentially high-risk population such as PLWHA.

Study Design & Method

People living with HIV today are people who have a life expectancy very similar to that of the general population, due to the extraordinary effect that antiretroviral therapies have produced on survival and on the reduction of HIV-related morbidity. Nowadays PLWHA patients face a chronic condition with all the consequences that this situation entails (symptoms, side effects of the drugs, management of adherence and quality of life, periodic supply of drugs, blood samples to check the tolerability of the drugs, any new clinical events that may occur, need advice from other specialists, etc.). With the persisting of pandemic restrictions, it is essential to find ways of managing these patients remotely to allow continuity of care that will inevitably not reflect what happened in pre-epidemic periods.

9122021(2)

Capture the evolution of the disease and establish proximity and relief through a remote collaborative model

9122021(3)

The daily patient experience, integrated with the historical patient health data, is translated into useful insights and experience for medical practices

Testimonial

"It will be a sort of 'virtual clinic', which will allow us to demedicalize the life of the chronic patient with HIV as much as possible, maintaining close contact even when face-to-face visits are impossible, with an 'on demand' web meetings in case of the appearance of physical symptoms or psychological problems, which in this phase of the pandemic can have a significant impact on the quality of life of people with HIV.", Dr. Antonella Cingolani, Department of Infectious Diseases of the Gemelli Polyclinic

Group 368

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]]> 18919 Acceptance and Potential Impact of the eWALL Platform for Health Monitoring and Promotion in Persons with a Chronic Disease or Age-Related Impairment https://healthentia.com/acceptance-and-potential-impact-of-the-ewall-platform-for-health-monitoring-and-promotion-in-persons-with-a-chronic-disease-or-age-related-impairment/ Sun, 10 Jan 2021 14:41:11 +0000 https://healthentia.com/?p=18737 Topics: eHealth, Devices, e-Health applications SOURCE: MDPI Open Access Journals, 2020, Oct. ;  BOOK DOI Link, Chapter DOI Link Acceptance and Potential Impact of the eWALL Platform for Health Monitoring and Promotion in Persons with a Chronic Disease or Age-Related Impairment Francesco Infarinato 1 ; Stephanie Jansen-Kosterink 2 ; Paola Romano 1 ; Lex van...

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Topics: eHealth, Devices, e-Health applications

SOURCE: MDPI Open Access Journals, 2020, Oct. ;  BOOK DOI Link, Chapter DOI Link

Acceptance and Potential Impact of the eWALL Platform for Health Monitoring and Promotion in Persons with a Chronic Disease or Age-Related Impairment

Francesco Infarinato 1 ; Stephanie Jansen-Kosterink 2 ; Paola Romano 1 ; Lex van Velsen 2 ; Harm op den Akker 2 ; Federica Rizza 1 ; Marco Ottaviani 1 ; Sofoklis Kyriazakos 3,4 ; Beatrix Wais-Zechmann 5 ; Markus Garschall 5 ; Stefano Bonassi 1,6 ; Hermie J. Hermens 2

Abstract

Pervasive health technologies can increase the effectiveness of personal health monitoring and training, but more user studies are necessary to understand the interest for these technologies, and how they should be designed and implemented. In the present study, we evaluated eWALL, a user-centered pervasive health technology consisting of a platform that monitors users’ physical and cognitive behavior, providing feedback and motivation via an easy-to-use, touch-based user interface. The eWALL was placed for one month in the home of 48 subjects with a chronic condition (chronic obstructive pulmonary disease—COPD or mild cognitive impairment—MCI) or with an age-related impairment. User acceptance, platform use, and potential clinical effects were evaluated using surveys, data logs, and clinical scales. Although some features of the platform need to be improved before reaching technical maturity and making a difference in patients’ lives, the real-life evaluation of eWALL has shown how some features may influence patients’ intention to use this promising technology. Furthermore, this study made it clear how the free use of different health apps is modulated by the real needs of the patient and by their usefulness in the context of the patient’s clinical status.

Keywords: eHealth; telemonitoring; telerehabilitation; ICT platform; acceptance of technology; user experience; MCI; COPD; chronicity; frailty; patient empowerment; pervasive healthcare; health apps

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